It was hard to miss 33-year-old model and writer Abena Christine Jon'el's appearance at a recent major fashion show in Ghana.
Walking
the runway with her prosthetic leg wrapped in a colourful African print her
appearance made a big impact.
The Ghanaian-American was hoping to make a statement about the visibility of people with disabilities, building on years of work in the US and here in Ghana of speaking out
on the issue.At
two years old, Abena's life became defined by a challenge most adults would
struggle to face.
A
large tumour had appeared on her right calf, the first sign of a rare,
aggressive soft-tissue cancer, rhabdomyosarcoma. Doctors presented her mother
with a difficult choice: radiation, which could have left her dependent on a
wheelchair, or amputation. Her mother chose the latter.
"It
was the best decision she could have made," Abena says today without
hesitation, speaking to the BBC surrounded by friends and family at a
restaurant in the Ghanaian capital, Accra.
She now lives in Ghana, but she grew up in Chicago in
the US.
Even
before she understood what cancer was, her early life was shaped by treatment
and recovery. Movement became a way of measuring survival and rebuilding
confidence. In a way, it was taking ownership of a body that had been through
so much.
But when she speaks about her younger years, it is not
the cliché story of the inspirational disabled child sometimes presented in
glossy campaigns: a compliant person bravely but silently triumphing against
adversity.
She
rejects that stereotype entirely.
"People
imagine disabled kids as straight-A students who are sweet, quiet and
perfect," she says.
"I
was the opposite. I was loud, I was a little black girl running around on one
leg, I did not let anyone push me around, and I was struggling through
school."
Her
disability never softened her personality, it sharpened it.
And
that sharpness, what she now jokingly describes as her "professionally
inspirational" energy, is the very thing that would later carry her
through life.
In
the US, she worked as a writer – initially as a poet – and then became a public
speaker talking about her life experiences, in the hope of inspiring people.
She
wanted people to see what she was accomplishing and to "let me hold a
mirror so you can see yourself and what you can accomplish if you
believe".
Long before she dabbled with public speaking or
modelling, Abena felt a pull towards Africa, a feeling she could not articulate
but could not ignore.
As
a young adult in the US, she immersed herself in books on the history of Africa
before colonialism, particularly West Africa. The more she read, the stronger
the pull became.
But
it was her first visit to Ghana in 2021 that changed everything.
In the central region of Ghana, standing at the Assin
Manso slave river site – where enslaved people were sold before travelling
about 40km (25 miles) south to the coast - she experienced what she describes
as "a moment that rearranged my entire understanding of myself".
The
weight of history met the weight of belonging, forming a sense of identity she
had never felt growing up in the US.
When
she returned, she fell into a deep depression.
"It
felt like I had finally found a missing part of myself in Ghana," she
says."Leaving felt like being torn away from somewhere my soul
belonged."
Three
months later, she packed her bags and moved permanently.
Ghana
embraced her in ways she still struggles to describe.
"I
am Ghanaian by ancestry and adoption," she says with pride.
Over
the four years she has lived in Accra, Ghanaians have claimed her in the way
only Ghana knows how, with warmth, with teasing, with family, and with names.
She now lives with a Ghanaian mother who introduces her as her own daughter.
"My Ghanaian identity is not pretend," she
says. "It is not cosplay. It is ancestral. Like Kwame Nkrumah said: 'I am
not African because I was born in Africa, but because Africa was born in me.'
That is exactly what Ghana is to me."
Her
prosthetic leg itself is a declaration of that love.
Wrapped
in kente, it is as much a cultural symbol as it is a mobility aid.
"It
always has been, and always will be, kente," she says. "It represents
my love for this country, its heritage, its pride."
Living
with a disability in Ghana has brought a new mission into her life, one that
goes far beyond personal expression.
For
Abena, the difference between how disabled people are treated in the US and
Ghana comes down to visibility and access.
"In
the States, progress is happening, slowly, imperfectly, but happening. Disabled
people are being invited into more spaces," she explains. "It is
still ableist, but at least there is an attempt to change the narrative."
Ghana, she says, is still at the beginning of that
journey. Not for lack of compassion, but for lack of representation.
After
her move, she continued to speak out for the rights of people with
disabilities.
"In
Ghana, disabled people have not been widely showcased in a positive
light," she says. "So stigma thrives. Negativity thrives. People do
not see us in powerful or beautiful or joyful positions, they see us only in
struggle."
Her
advocacy is built on changing that perception. Not with pity, but with
visibility.
With
her kente prosthetic, unfiltered personality and refusal to shrink herself to
fit public expectations, Abena wants Ghanaians to see disabled people as they
are: ambitious, stylish, talented, complex, proud and human.
"Disability
is not a limitation. Having a disability is not what makes you disabled,"
she says.
"Lack
of support, lack of accessibility, that is what disables you."
Her advocacy found a new stage, literally, at the 15th
edition of Rhythms on the Runway, one of Africa's most celebrated annual
fashion shows, which took place last month at Accra's historic Osu Castle.
In
the build-up to the show, Abena approached the organisers directly.
She
knew what her presence would mean, not just for herself, but for Ghana. She
wanted to open the door to a different kind of representation, to force a
conversation the country had delayed for too long.
"I
knew it would be a monumental moment for Rhythms on the Runway and for
Ghana," she says. "If I wanted inclusivity in the industry, I had to
be willing to take that first step."
And
she did.
When
she stepped onto the runway, draped in fabric and confidence, her prosthetic
gleaming under the spotlights, the room shifted. What happened next became one
of the most talked about moments of the night.
"Her strength showed right through, speaking
volumes. 'I am differently able and I have got this,'" Tourism, Culture
and Arts Minister Abla Dzifa Gomashie said.
"Her
walk was not just a performance it was a powerful affirmation that talent,
beauty, and confidence know no limitations. We are proud to have provided a
platform where her light could shine so boldly," fashion show organiser
Shirley Emma Tibilla said.
"Abena's
presence was absolutely powerful. This is what true inclusion looks like,
celebrating every story, everybody, and every ability," Dentaa Amoateng,
entrepreneur and founder of the Guba diaspora investment awards added.
But
for Abena, the significance of the evening was not the applause. It was the
message. Disabled people were not just spectators that night, they were centre
stage.
Standing
at the intersection of identity, disability, heritage and fashion, Abena
represents a new way forward for Ghana, one where inclusion is not quietly
suggested, but boldly demanded.
Her
journey from a two-year-old cancer patient to a woman reshaping how Ghana sees
disability is not a story of survival, it is a story of reclamation.
She reclaimed her identity, reclaimed her mobility,
reclaimed her belonging and reclaimed her place in a country that, in her
words, "fought for me before I even stepped foot here".
Her
work is far from finished. But whether she is on a runway, behind a microphone,
or mentoring young amputees, one thing is constant, she refuses to dim her
light. And she refuses to let others like her be dimmed either.
"Ghana
is my home," she says.
BBC

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